American Heart Association – Charlotte’s Story

– My name’s Rachel Richey, and I am the Mom of three girls, ages almost eight, five and three, and Charlotte is my middle child. – My parents were here visiting, and she wanted to show
them how she could ride a scooter now, and so she was on the
scooter excited and laughing, and next thing we know she went over, and I got to her, and she was actually lifeless. – The next thing I know, I hear Paul running the
door screaming call 9-1-1. – She had actually stopped
breathing at that point, and I started having to
do some mouth-to-mouth to begin that, 9-1-1 appeared. – They deemed it a concussion, which at that point your sort of think, okay she did fall off the scooter. – About three weeks after that or so, she was just running across the back yard, next thing we know she was down, and so we got over there to her, and was having another episode. – At that moment, I knew that I would do whatever it took to figure out what was going on. There was something not
right about this situation. – At that point, they thought it was a seizure, but the doctor said this
just doesn’t look like it’s a seizure, so why don’t y’all have it
checked for a heart condition. – So, that point we
went to a cardiologist. – He ended up putting
Charlotte on a stress test, and he said he’d never put a four year old on one before. – Two days later, he calls us back and we get
word that she has CPNVT, which is an electrical heart condition with her heart is
accelerated from emotional or physical activity. She has extra heartbeats
that could lead to v-tach. – Everyday for Charlotte, she basically takes
medication twice a day, and then she does wear a medical
bracelet wherever she is. – My special bracelet. It tells us all the
information for my heart. – When she got this diagnosis, all I could think about is here’s a child who wants to be outside playing, who’s excited about things, who enjoys being and being a part of life, and at first it was thinking, is all that going away? But, we have found how we can
let her do certain things, and she knows that she
needs to take breaks. – I think there’s always underlying fear of what’s the next thing that can startle. What’s the next thing that can cause that heart rate to jump? But, knowing to enjoying every moment, knowing that there are groups like the American Heart
Association that are going to not walk away, but to journey with. Knowing that the support is there, and we don’t have to do this alone. I think that’s huge. – Something good has come out of all this. Kentucky had a bill that was coming out this last session that allowed
for high school students to be required to learn CPR, and we have shared our story
through You’re The Cure, through the American Heart Association. – Now, high school students, some point in that four years
will be certified in CPR. – So, it has given us a chance
to help hopefully advance a generation that knows CPR. – [Paul] Having more people
certified is a great thing. – I encourage anybody
who has the opportunity to support the American Heart Association because probably somewhere
within your family or within your friends
there is some effect of heart disease or heart condition. – Without heard disease research, I know that they’ll never
be a cure for my daughter.

  1. I am so sorry for that sweet baby girl! Bless her! I have recently found out I have A-fib. But I am older, and I can adjust my life around this condition. It didn’t show up in my young years. I am praying 🙏🏼 for her. Much love and blessings sent her way!

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